The fog comes in on little cat feet …
There are things that will never change, things we will carry along with us always. But as we venture into the murky future, we must find our strength by learning to leave things behind.
I have been diagnosed with dementia. And it stinks. And it will only get worse. I’m writing this because, well, I write, and also because you might not realize my condition right away if you know me (maybe you would and I’m kidding myself). Also, there are probably a lot of older people out there like me and maybe this will help a little.
Memory loss, dementia, Alzheimer’s, runs in my family, so I’ve been pretty serious over the years about checking myself out. I had my first work-up at Northwestern more than 10 years ago after one of my sisters died of Alzheimer’s at age 80. I was fine. I’m 80 now and I’m not fine. I switched to Rush because they have what they call an Alzheimer’s Center, and about two years ago, my test scores started going down. Recently I had what to me was a shocking lapse on a follow-up memory test. The doc and I sort of tacitly agreed not to continue the whole test.
My mother came from a huge family — about 10 siblings — and several of her sisters became senile. One of them, my Aunt Agnes, who was always smiling, didn’t come to my wedding because her daughter was sure Aunt Ag would burst into random song. Had I known what I know now, I would have insisted Aunt Ag come and sit in the front pew.
I love to sing, but I quit my wondrous Sounds Good Choir when it went online. I was afraid it would be too hard. I’m going to try again in January and ask for all the help I need. Cross your fingers. Technology is my enemy.
As I wrote this, I was pretty sure I could name all the members of the Supreme Court if you gave me enough time, though it would take longer than usual. On review, I found that I could picture most of them and could not name a single one, even the newest undercover from The Handmaid’s Tale.
And yet … And yet … I’m still pretty good at Jeopardy. I’m a political junkie, but this is one of the few things I can’t blame on Trump. However, if I had all the aides he had, I’m certain I could have run this country during the last four years about 100% better than he did.
Staying organized is difficult and getting worse, so I keep trying to simplify, simplify, simplify. I have a gadget I found on Amazon that allows me to wear my phone around my neck. I empty my purse every time I come home and fill it anew when I go out again. I try to carry as little as possible on my person — sort of like what men do. I hated the pile of papers and “stuff” on my desk in my living room, so I’ve moved the pile to another room where I can’t see it as well and try to take one thing off the pile every day and deal with it. So far, so good.
I can take care of my money, but I keep things very simple — a couple of credit cards, checking and an IRA — but I dread doing my very simple taxes. I live in subsidized housing. The annual rent documents reduce me to tears, but I’ve lined up help for next year.
In terms of other help and support, Oak Park Township and some other agencies had a large meeting several months ago, and decided to become Dementia Friendly. I’m not aware of anything new. I did note that someone talked about having colored armbands for people with dementia who are out and about. Holy Mother of Nazi Germany! I guess the intention was that the person with dementia would get help crossing the street or whatever.
The township has a few activities, but I’m not sure they fit my needs. My understanding is that when I qualify for dementia help, the helper will be chosen from the same pool of people who help with housework. Which might be fine. Or not.
The Wabi Sabi film festival, hosted by Marc Blesoff, has interesting movies about the accomplishments of older people and the audience seems to like them.
All by myself, I’ve reached this conclusion: There are two important things you need with this condition — plenty of money and a devoted, loving and patient partner. I guess that’s true of any disease, particularly a wasting disease.
I really like the following words on the subject, by, of all people, Charles Bukowski:
You Get So Alone at Times That it Just Makes Sense
there’s nothing to
there’s nothing to
there’s nothing to
a person can
with drink in
as the walls
one comes through
with a certain
the possibility of
to help them
and to these