Oak Parker battling ALS announces fundraiser

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By Ken Trainor

Staff writer

Last fall, we ran a story about Oak Park native Sarah Coglianese and how her life has changed since she contracted ALS (amyotrophic lateral sclerosis) at the age of 33 [Living with ALS, News, Oct. 21].

Recently Sarah sent an update in the form of a 5-minute video about her life in San Francisco, which has already been viewed 160,000 times.

Sarah and her team of family and friends is gearing up for another round of fundraising because progress on this currently incurable disease is her only hope.

"We will be doing the #whatwouldyougive fundraiser again this year," Sarah writes. "For those who are not familiar with it, the fundraiser challenges people to step into the life of an ALS patient for a day or just a few hours, giving up their legs, arms, or voice to raise money for, and awareness of, this disease."

The challenge takes place in August. Last year they raised $150,000.

To learn more (and to read Sarah's excellent blog), visit Speed4Sarah.com.

To read our article from last October, click here.


Email: ktrainor@wjinc.com

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Reader Comments

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Mofoso Fist from texas  

Posted: April 5th, 2020 11:22 AM

My first symptoms of ALS occurred in 2011, but was diagnosed in 2013. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Akanni herbal centre , It has made a tremendous difference for me (Visit www. akanniherbalcentre .com). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. 

May Fallon from Illinois  

Posted: July 1st, 2016 4:25 PM

Reading that a person "contracted ALS" gave me pause as this wording is almost always used to describe an infectious disease, which ALS is not.

Bridgett Baron  

Posted: June 24th, 2016 10:56 PM

Wow...Thanks for posting this, Ken. I look forward to reading Sarah's blog. The video is enough to digest and process for now. And I look forward to being part of this solution. "ALS is not an incurable disease, it's an underfunded disease."

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