Last fall, we ran a story about Oak Park native Sarah Coglianese and how her life has changed since she contracted ALS (amyotrophic lateral sclerosis) at the age of 33 [Living with ALS, News, Oct. 21].

Recently Sarah sent an update in the form of a 5-minute video about her life in San Francisco, which has already been viewed 160,000 times.

Sarah and her team of family and friends is gearing up for another round of fundraising because progress on this currently incurable disease is her only hope.

“We will be doing the #whatwouldyougive fundraiser again this year,” Sarah writes. “For those who are not familiar with it, the fundraiser challenges people to step into the life of an ALS patient for a day or just a few hours, giving up their legs, arms, or voice to raise money for, and awareness of, this disease.”

The challenge takes place in August. Last year they raised $150,000.

To learn more (and to read Sarah’s excellent blog), visit

To read our article from last October, click here.


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