Thank you for bringing attention to this disease and helping this family [One-in-a-million kid tries to beat the odds, News, Jan. 24].
We are another HLH family in Southern California and, at the moment, we know of appoximately 18 families affected with this disease. All funds raised for research are privatly raised. We are working hard to help raise the needed funds for research to help diagnose and treat this life-threatening disease. Any opportunity to get the information into the community is greatly appreciated.
Submitted at WednesdayJournalOnline.com